Help Others by Sharing Your Blood Clot Story!

NBCA is collecting stories that reveal the personal side of blood clots and clotting disorders.  Too often, conditions are dehumanized through clinical terminology and research jargon.  While such language is important and necessary in certain forums, a human story that describes one’s personal relationship to a condition is most accessible to the general public.
You want to reach the public and healthcare providers and help them understand more about living with blood clots and/or clotting disorders.  We want to help you reach your goal!
Send us your original stories (following the guidelines below).  We will help you polish your writing with the help of an editor.  Once complete, you can choose to have your story published in one of our upcoming newsletters, or have it posted on our website,  If you choose, you can change your name or other identifying information to protect your confidentiality; just let us know your desire to do so. 

Guidelines for writing your story:

  1. Your story should be about your personal experience with blood clots or clotting disorders.  This does not mean that you must have either condition—it may affect your child, partner, friend, parent sibling or another person close to you.

  2. You should aim to make 2-3 key points through your story; it is up to you what messages you would like to convey.

  3. Your story should not be longer than 750 words.  It does not need to be that long if you can share your story in fewer words.

  4. Your story should have a clear beginning, middle and end.  Each person’s beginning, middle and end will be different, so define it for yourself.

  5. Has this illness changed you?

  6. What have you learned?

  7. Do you look at your life differently now than before you were diagnosed?

  8.  If you were to give advice to others, what would it be?

  9. Your story must be typed.

  10. Your writing does not need to be perfect. Communicate your story to the best of your ability.  Our editor will help refine your story--without losing your voice.

  11. Tell us how you would like your story shared (in a newsletter, on the website, or editor’s choice).  Please also let us know if you would like us to contact you about opportunities to present your story in other forums (i.e. public speaking). 

  12. Include your contact information: Name, Address, Phone Number and E-mail address (if applicable).

Send your story to us by email at